Resources
Information and support are available for families affected by Canavan disease from advocacy organizations such as:
Families can also access resources on gene therapy, drug development and understanding clinical trials by visiting:
Information and support are available for families affected by Canavan disease from advocacy organizations such as:
Families can also access resources on gene therapy, drug development and understanding clinical trials by visiting:
CANinform Family Brochure
CANaspire Family Brochure
Aspa is committed to increasing awareness and education about Canavan disease.
EveryLife Foundation Annual Scientific Workshop
September 5, 2019
Building a Natural History Study for Canavan Disease
Washington, D.C.
The Joint 16th ICNA Congress & 49th Annual CNS Meeting
CANinform Natural History Study Design and COVID-19 Mitigation
October 12-23, 2020
48th Annual Meeting of the Child Neurology Society
Natural History Study Design
October 23-26, 2019
Charlotte, NC
European Society for Gene & Cell Therapy
IV administration compared to IT and ICV
October 22-25, 2019
Barcelona, Spain
Congress for Pediatrics and Adolescent Medicine, focused on pediatric neurology
Natural History Study Design
September 11-14, 2019
Munich, Germany
For additional presentations, posters and publications, please visit www.aspatx.com