Information and support are available for families affected by Canavan disease from advocacy organizations such as:

Canavan Foundation for the Prevention of Canavan Disease
Canavan Research Illinois | A family's fight for the cure
National Tay-Sachs and Allied Diseases Association | NTSAD

Families can also access resources on gene therapy, drug development and understanding clinical trials by visiting:

European Society of Gene and Cell Therapy

Information for Families:

CANinform Family Brochure

Thumbnail image of Caninform natural history study family brochure

CANaspire Family Brochure

NTSAD Family Conference
April 23, 2021
Natural History Webinar

NTSAD Family Conference
April 23, 2021
Aspa Gene Therapy Webinar

Aspa Webinar for Families
September 16, 2020
Introduction to Gene Therapy

Webinar: Aspa’s Approach to Gene Therapy
February 2, 2022
A Closer Look at the Science

Scientific Presentations and Posters:

Aspa is committed to increasing awareness and education about Canavan disease.


American Society of Gene & Cell Therapy
May 13, 2021
Evaluation of AAV Gene Therapy for Canavan Disease in Animal Models

EveryLife Foundation Annual Scientific Workshop
September 5, 2019
Building a Natural History Study for Canavan Disease
Washington, D.C.

Aspa presentation on steps to build Caninform, a natural history study of Canavan disease

The Joint 16th ICNA Congress & 49th Annual CNS Meeting
CANinform Natural History Study Design and COVID-19 Mitigation
October 12-23, 2020

48th Annual Meeting of the Child Neurology Society
Natural History Study Design
October 23-26, 2019
Charlotte, NC

Aspa Poster on the natural history of Canavan disease

European Society for Gene & Cell Therapy
IV administration compared to IT and ICV
October 22-25, 2019
Barcelona, Spain

Aspa Poster on AAV gene therapy in a primate model of Canavan disease

Congress for Pediatrics and Adolescent Medicine, focused on pediatric neurology
Natural History Study Design
September 11-14, 2019
Munich, Germany

Congress for Pediatrics and Adolescent Medicine, focused on pediatric neurology poster

For additional presentations, posters and publications, please visit