All participants in CANinform will be assigned to a clinical site. Prior to enrollment, families will be asked to review and sign an appropriate consent form. The family will be asked to provide all available medical records to the clinical site in advance, to allow the study doctor to become familiar with the patient’s medical history.
For patients living in the US and certain other countries, Aspa is offering a free medical record retrieval service to help families obtain their child’s records.
Please see FAQ “What will happen during a CANinform study visit?”